Thursday, May 8, 2008

A Writer's Brain

I wrote the first draft of my first mystery in six weeks. When I tell people that, they are shocked and envious. But here's the rub: I'd spent the previous several years working on another writing and research project, a project I could not finish because medical issues got in the way. All that time, while I couldn't write, couldn't even really read, I suspect my brain was busy working on the murder mystery. I just wasn't physically able to write anything down, or even vocalize it, until I got all the weird electricity in my head under control.

I am an epileptic. Or, in modern, politically correct language, I have a seizure disorder. This puts me--at least according to epilepsy.com--in great literary company. Unlike Dostoevsky or Dickens, however, I've never had any desire to inflict my disorder on one of my characters. No one reading my fiction, at least to this point, would diagnose me as an epileptic writer.

Epilepsy is a pain in the tush. I probably had my first seizures in my teens, but they were "absence" seizures, "partial" seizures or dizzy spells, nothing that presented in a fashion recognizable to my friends and family. I didn't have my first grand mal seizure (or, again with the more politically correct label, "tonic-clonic seizure") until college. The first drug they put me on--Dilantin--I was massively allergic to. I have no recollection of the three weeks before they discovered the allergy but for brief flashes, most of which involve doctors.

But then they put me on another drug, Tegretol, which worked fabulously for fifteen years. Until it slowly began to fail, which caused the medical problems that prevented me from finishing my dissertation. In 2005, I went on Lamictal. That's when I wrote my academic mystery. Followed, in the space of about eighteen months, by a rough draft of my second academic mystery, and a first, second, and final draft of the beading mystery that eventually found a home with an agent. The rough drafts of each book took progressively longer. I believe that's because by the time I got to the beading mystery, I'd run out of all the stuff that had built up while the Tegretol was failing.

Then came the hives. Six months consumed with trying to find their source didn't leave a lot of time or physical or mental energy for writing. Eventually, they figured out that the Lamictal had caused the hives, and I had to go off of it. Then they put me on Keppra. Once the hives went away, I could write again, though not nearly at the level I'd been working at while functionally medicated.

In a couple of weeks I have to go get my brain recalibrated. I go into the hospital for five days, they hook me up to electrodes and videotape me while I sit around doing nothing. This is because the brain noise is now too loud for me to write, too loud even to allow me to read more than a few sentences at a time. It has taken me hours to write this post--a far cry from a whole mystery in six weeks!

So when I read about Tolstoy, and Carroll, and Dante being epileptics, I wonder whether they would have been as prolific, and whether they'd have written such interesting things, if they'd lived in the era of EEGs, anti-convulsants, and videotaped hospital stays. Maybe I'd be a better writer if I stopped taking medications for a while and went off somewhere where all the walls were padded and I couldn't hurt myself if I had a seizure.

Or maybe I'd just be out of my mind with boredom, and unable to write at all.

9 comments:

Nan Higginson said...

Well, that's more than I ever imagined could happen to such a strong woman of great brainpower. Getting your brain recalibrated sounds like an amazing medical trick and a most promising move. Sure do hope it does the trick.

With all this state-of-the-art examination of the human brain (yours) I'm thinking you might end up with some sci-fi mysteries.

Back in my class room days I asked my bright-eyed students to consider going into computer-based medicine. I need a google implant to help me find all the stuff I keep losing track of. If you've got a doc with those kinds of powers, let me know.

I will forever be in awe of how much you've accomplished in these last few years. And you've handled it all with great good humor. What a gal you are! So glad I know you! So glad you've put up with all this crap so you could get back to "normal" - whatever that is. At least you'll never be boring!

Mega hopes for phenomenal success with this recalibration therapy. You're one phenomenal gal.

Laura (Kramarsky) Curtis said...

LOL! It sounds so condensed in the post...really, it happened over a very long period, and I am certain easily as much has happened to all of us.

The "recalibration" is really just a test. They want to see whether the drugs have controlled the seizure activity, which is why they video at the same time...the last time I did this, there was NOTHING on the tape, I never even twitched, but I had 50 little split-second seizure episodes in the space of an hour.

I suspect the results this time won't be so exaggerated, but that the Keppra isn't doing the full job and they'll want to add something to the "cocktail." I am rooting for the drug (I forget the name) that my brother's neurologist calls the "supermodel drug" because it makes you thin and stupid. Since I've never in my life been either of those things, I think it might be great to have a new experience!

Elaine Will Sparber said...

Your brain, to me, is just fine, Laura. Don't let them recalibrate it too much!

Laura (Kramarsky) Curtis said...

Thanks, Elaine!

Terrie Farley Moran said...

Laura,

You couldn't be stupid if you swallowed ten years supply of the supermodel drug all at once. :)

We're all in your corner. I admire your stick-to-itiveness with all this going on in your life.

I remember how tortuous the hives were for you, but you triumphed and I have a feeling, you always will.

Terrie

the Bag Lady said...

Thanks for sharing with us, Laura. I hope the recalibration goes well. Years ago, I had a friend with epilepsy. She was on Tegretol at that time. We lost touch when I moved away (she's a lousy letter-writer!), and I've often wondered about how she's making out now. She had petit-mal's all the time, so I learned to just repeat myself. Mind you, most of what came out of my mouth in those days was drivel, anyway, so she really wasn't missing much! (Ha, in those days....not much has changed, really!)

Laura (Kramarsky) Curtis said...

Terrie -

If I can't be stupid, can I at least be thin? Not that I'm enormous, but I could really use a hand getting rid of the steroid weight!

Bag Lady -

Tegretol was a wonder drug for me. Unfortunately, I had abdominal surgery in 2001 and was NPO (nothing by mouth at all, not even water) for 8 days, which meant no drugs because you can't put Tegretol in an IV. They think that's when my seizures changed and the Tegretol stopped being effective. So chances are it's still doing its thing for your friend!

I got in touch with a woman the other day I haven't talked to in three years. Her name came up and I thought I'd give her a call. It was tons of fun, so I recommend seeing if you can reconnect!

Clare2e said...

Laura- Thanks for this informative post. Epilepsy's a 'pain in the tush?' I had a totally different idea of what parts were involved. Talk about supermodel stupid! Rather than those boring sounding 5-day video observations, may I recommend sitting on an inflatable donut?

Laura (Kramarsky) Curtis said...

Clare -

Ah, but then they'd have to attach 31 electrodes to a rather different, and less convenient, part of my anatomy!